A bit about me...
I am 42 and a wife and mum of two gorgeous kids, and I have always LOVED fashion, but never had the sort of money to splurge on high-end designer labels. Instead, I enjoy wondering the High Street shops and internet to find the interpretations and looks that will fit to my style and budget.
Over the years girlfriends have confided that they struggle with the changes to their bodies and lifestyles, (through pregnancy, work, getting older), and have felt unsure how to adapt their fashion sense to fit these changes.
People often comment on what I am wearing, asking were I get my clothes from, or how I know what to pull together?! My secret is that I know what suits me and what my style is, and how to make the latest fashion trend work. Part of the reason behind 'Styling in the Burbs' was sharing this with others, showing women you don't need to spend a fortune, that you can adapt the latest 'look' no matter what your shape.
Even though a fashion blog is something I have wanted to do for a long time, its never felt like the right time. Then in January 2014 I was diagnosed with a rare disorder, Pompe. This made me think about the goals that I wanted to achieve, and Styling in the Burbs was born! Being able to focus on Styling in the Burbs has been really positive and fun for me, and I am excited to be able to share my passion with you.
What is Pompe?
Pompe is a rare, genetic disease which is progressive and degenerative. It causes progressive muscle weakness throughout the body, in particular the skeletal muscles and diaphragm in adults. There is an enzyme replacement therapy, which can dramamtically slow down the progression of the disease. This treatment is funded in 76 countries, but not in New Zealand.
I am incredibly lucky to have an amazing, supportive family and group of friends who I surround myself with. I firmly believe that knowledge is power and in keeping a positive frame of mind. I still try to stay active, walking my dog and getting to the gym a couple of times a week.
I will not give up on the idea that I will get access to treatment here in New Zealand, and will continue to raise awareness about the shocking lack of funding of medicine for rare disorders in New Zealand.
For more on my personal story check out the links below;